My Immortal
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BUMP Hope you don't mind, I just wanted to double check that it wasn't someone else from postpals coming in case it was a CF patient. I know we have chatted about this on the forum, so you will probably understand why I am asking
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Hi Just wondering if you were able to arrange for the girl from postpals to attend the event? If she attends, hope she has a really good time
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Hi guys, David thanks for the advice, it's appreciated. Sacred Silence, I'm just stressing a bit about it. You are right nothing has changed. I'm just a worrier . I have calmed down a bit now thankfully and will see everyone there next Friday
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Hi again You haven't offended me, it's just that it's really hard to explain the whole cross-infection rules and how serious it is if people with CF catch certain bacteria from each other. I'm feeling worried about coming now, today I've not been able to shake this bad feeling about it. My son really wants to come but I'm just worried that we wil have really bad luck and end up sitting next to someone with Cystic Fibrosis as the talks in the hall or end up in a guest encounter with an attendee with Cystic Fibrosis. He will be so upset if I tell him we can't attend, going to give it some thought over the week. David you seem to know what's what at the cons, has anyone ever mentioned anything like this before?
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Isn't there a bus that the Hotel runs?
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Hi Rhi Don't worry, I didn't think you were being argumentative. As someone who reads a lot but rarely posts, I feel like I know you and from what I know you are certainly not arguementative. I understand that SM/ME can't gurantee that no-one else at the show would have CF. It's jut that when postpals was mentioned it started alarm bells ringing a little bit as I know they also help children with Cystic Fibrosis but they also deal with kids with lots of different diseases. If someone else with CF was there, with there being so many people there it is unlikely (but not impossible) that we will be in close contact with them. Along with all the other rubbish CF throws at your child, they can't even mix with people who are in the same situation as themselves. At hospital all the kids are segregated. There are some families who have more than 1 child with CF as it is a genetic disease, in that situation there isn't a lot you can do but I try my best to make sure I protect my son and others with CF. Hopefully all will be okay. I'm just sensitive when it comes to discussing this.
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Hi there Just to let you understand, as the parent of a little boy who has a life-threatening disease I get that he could catch the common cold at ET4 and probably will but people with Cystic Fibrosis can infect each other with specific bacteria that would not live in the lungs of people without the disease. Once people with CF have this type of bacteria in their lungs it can cause a sharp deteriation in lung function and reduce the amount of time they have to live. Sorry but there's nothing worse than people telling you that your child could catch a cold anywhere......when they think you are being over-protective about nothing. Of course anyone is free to attend any event they like and anywhere we go there could be another person with CF. If I knew for def that someone else with CF was attending then we would not be attending but there is no way for me to know that and given than 1 in 2500 people have the disease, the chances are hopefully quite slim. Don't want to start bickering but just wanted to clarify where I was coming from.
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Would be nice to see Gil again!
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Hi there I have heard of this charity as my son has Cystic Fibrosis but as others have said everyone has things close to their own hearts and ME will end up inindated with requests for ticket donations. Also, my son is coming to the event with me and he has CF, people with Cystic Fibrosis should not mix with each other due to cross-infection with bugs that are specifically attracted to the lungs of people with this disease (not a risk to the general public) so I'm hoping that if a child from postpals does come then they don't have CF as my son has quite a few bugs that could pose a risk to another person with this disease
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Guests Days & prices (updated July 6th)
My Immortal replied to showmasters's topic in London Film and Comic Con '09
Hi there, I booked for this event last week! The prices are fairly reasonable when you take into account guest travel etc.... x -
Next Twilight Saga Guest Speculation
My Immortal replied to Edward's topic in London Film and Comic Con '09
Booked for this event yesterday!!!! Also coming to ET2!!!1 Yay. Only found out about ET1 the day after it happened Can't wait for this and if another guest was to be announced then fantastic but I am happy with what we have also. -
Hi there, I am attending Eternal Twilight 2 with my son who has Cystic Fibrosis. I know this is going to sound strange to people who aren't familiar with this illness but people who have CF can't mix with each other as they grow bugs in their lungs which they can pass onto each other and this can be very serious. They cannot pass these bugs to the general public. For instance at hospital Cystic Fibrosis patients are segregated from each other and they are advised not to mix in the community. The condition isn't that common, it affects 1 in 2500 people and since there are 800 going to ET2 the odds of there being someone else there with CF are low. I don't want to come out and ask is there anyone else going to ET2 with Cystic Fibrosis, I just want to make it known that my son does have CF and is attending ET2. If anyone is affected by CF and wants to let me know they are also attending you can PM me. Again, sorry I know this won't make sense to most people. Best Regards
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Hi guys, I am also a Twilighter from Scotland, Glasgow to be precise! Nice to meet you.
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Name - Missy (Or My Immortal!) Age - 31 Live - Glasgow Fave films - Twilight Music - Girls Aloud, Pussycat Dolls, Linkin Park, Kanye West Love: Gigs, meeting likeminded individuals (Twilight Fans of course) TV: The Wire, The Sopranos, 24 Books - Twilight, New Moon, Eclipse, Breaking Down Hi guys, new to the forum. Didn't find out about last week's convention until today!!!!! Hope you all had a fab time. Not to worry though, I have just booked for October, looking forward to meeting you all then.
